Daniel’s Story

Dora Pinon and her son, Daniel Harlingen, TX “My name is Dora Pinon and my son Daniel James Pinon was born on September 12, 2011 in Harlingen TX.  I was having a hard time during labor, the nurses were still prepping the room when I felt Daniel coming, the...

Graysen’s Story

Graysen’s Story Lago Vista, Texas “Graysen was born May 1, 2014. He was born with the heart conditions DORV, AV Canal, TAPVR, and also no spleen, a malrotated stomach, and hiatal hernia. Graysen’s conditions together not only place him in the CHD category...

The Wiley Family’s Story

The Wiley Family – Austin, Texas “Sally Wiley was 22 weeks pregnant when she and her husband Jay learned their unborn son Anders was developing a devastating heart defect known as Hypoplastic Left Heart Syndrome (HLHS), which would severely disable and...

Trevor’s Story

Trevor Christopher Berg Round Rock, TX Diagnoses: Truncus Arteriosus, ASD, VSD, Interrupted Aortic Arch and Stenosis of the Left Pulmonary Artery At 37 weeks, Trevor was born on May 29, 2007 via emergency cesarean section; even though he was not tolerating labor he...

Ethan’s Story

Ethan TCH Patient “On February 6, 2013, I stood in a hospital room and my world ended as knew it. I transformed from a typical mother of 3 little boys to a vigilant advocate, fighter and a tad bit crazed mother of warrior. At just 8 weeks old, my baby Ethan was...

Lucas’s Story

Lucas was born with a litany of congenital heart defects (TA, L-TGA, ASD, VSD) but is essentially a single left ventricle heart warrior. We first discovered he didn’t have the typical clover-leaf heart at a 16 week ultrasound and followed his growth with regular...